Tag Archive | University of Michigan

Son’s Surgery Stream-of-Consciousness

So I’m back in the University of Michigan Hospital for yet another surgery for my son, Josiah.  This is now his 18th surgery…but thankfully not one of the biggies (Open Heart, Brain Tumor, or Liver Transplant).  During the pre-op preparations he told one of the cute nurses “Surgeries are my hobby!”…& being autistic he wasn’t exactly joking…

This is the first time he is having the surgery In the New Mott Children’s portion of the hospital.  The last 2 surgeries were in the adult hospital even though the New Mott was available.  His Liver Transplant being done in the University Hospital was more of a challenge since we were told it would be done in Mott & he/we weren’t prepared for the lower key aspect of care on the adult side.  Being autistic, a Developmental Disability, means that my son is in many ways “younger” than his chronological age & he still appreciates at least some aspects of Pediatric medical care.

Today’s surgery involves the Pediatric Urologist, as these are birth related defects that require intervention.  I believe he may always need to see the Pediatric Urologist if he has further issues in this domain as an adult Urologist wouldn’t be familiar with the particular needs & concerns that go along with birth defect concerns…at least that’s the rationale why he will always be seen by Pediatric Cardiology for his Congenital Heart defects & cardiovascular management, so I’m assuming it may be similar with Uro.

Today I’m really tired from a lack of sleep for the last few days…& possibly additionally fatigued by some degree of emotional strain, just because surgery is still scary & dangerous even if it’s not being done on a vital organ, per se…I doubt that there will be much good sleep in his hospital room tonight either, but maybe he’ll be lower key in the post-op phase & both of us can get some naps in…

Being at U of M is fairly “routine” for Josiah & I so we may not be so cognizant of how many other people who are here for medical care are facing dire experiences.

The electronic computer screen in the Pediatric Waiting Area on the 2nd floor of New Mott has space for 78 cases…& 77 of these spaces were filled in–Wow!  I wonder if PCTU (Peds Cardio-Thoracic Unit) still has its own separate waiting room like it did back when Josiah experienced his 2 Open Heart Surgeries, if so there could be more than 80+ kids having surgery here today…Honestly that could be the case any way in that the 78 case space may only reflect the current cases.  Josiah’s surgeon had at least 3 surgeries today & certainly many of the other surgeons would have more than one surgical case/day.

Although J & I usually feel comfortable & safe here at U of M there are many others here that may be completely overwhelmed.  I know when I first came here when Josiah was an infant & transferred here from his birth hospital by ambulance the whole experience was surreal & intense.  I hope most of these kids & families are just briefly passing through & not looking at lifelong care in multiple arenas of intensity like with Josiah.

I went to Guest Assistance to get a new Parking Pass, & am glad that they have finally reverted to issuing them for 3 months, not just one.  It’s a blessing that they provide this service for people of limited means.  I’m also thankful for the possibility of getting some reimbursement from Josiah’s Insurance for meal costs.  It somewhat takes me back to those more intense days where I’d get those vouchers from Social Work & then go down to the Hospital Cashier on weekdays to get those funds…I’m also thankful for U of M’s financial assistance program that allowed me to personally get some medical without having further out of pocket costs beyond what our insurance provided!  If not for that assistance I likely wouldn’t have taken care of certain medical needs, at least not as quickly because the out-of-pocket costs would have been prohibitive…

I’m so thankful for the amazing quality of care Josiah has received at U of M for these 2+ decades!  This place & the people who work here are blessings!!!

This is the first surgery that had me issued with a pager that could display text messages.  Though that is quite convenient to get written updates it also reflects the diminishing of personal contact & care that a face to face with an OR nurse or student doctor could provide.  There are pros & cons with either approach…hmm.

This is the first surgery we’ve experienced with a group of people praying for us who are also checking in & communicating online to the degree the other blogs have been (CTH & Stella’s).  It’s bittersweet in that these are people we don’t personally know but they seem, in some respects, more interested & invested in what’s happening with Josiah than some of the family, friends, & church family we have…I wonder if I was “on Facebook” if there would be more of those type of interactions–but I doubt I’ll ever join & find out.

Tonight being the night for Skyline Café, the free food & music event that happens on Thursday evenings, I hope that I’ll be able to get a “real” meal there, since it’s only got a one hour window & it might just overlap when Josiah is getting out from under anesthesia.  I meant to pack up some type of lunch for our trip today, but my sleeplessness lead to even more forgetfulness than usual so I forgot!  At least there are some snacks in my collection of hospital trip crap to help tide me/him over.  I really hope the staff remember to give Josiah dextrose to help with blood sugar…

Gotta page to talk with the doctor so gotta run!…

A Pleasant Peninsula–Lovely Tribute to Michigan

Source: A Pleasant Peninsula

The author of this piece drew my attention to it after seeing I’d posted her colleague’s tribute to Tennessee previously.  After checking out both of those moving tributes to beloved home states there is now another goal to add to the many endeavors I hope to pursue…to write some of my own thoughts, feelings, insights, & history about Michigan…and eventually some of the other states that represent the historical homes of my ancestors…

Well, I was hoping to grab a couple of quick goodies to give a hint of flavor that might come as I meander Michigan in my mind…but it’s going to take more work & time than I’m going to dedicate right now.  I’d wanted to include a link from CyndisList.com (a wonderful genealogy site!) to an item I read many years ago either a letter or a journal describing some early conditions in Detroit.  This may have been surrounding the 300th Anniversary of Detroit and involved more than one item.  Well, it’s going to take more digging so will have to wait for now, there was a description of plague conditions in Detroit, Native characters, and a letter describing Detroit as “the Paris of America”!…

J. J. Hagerman from bing.com image search

James John (J. J) Hagerman was one of my husband’s ancestors and his family moved to Michigan from Canada in his childhood.  He attended the University of Michigan and worked in mining in Michigan’s Upper Peninsula.  He had wide ranging interests  and developed business ventures and residences in a number of states.  Here is a link to a Wikipedia page about him, not that I endorse Wikipedia as a source, but it’s a convenient jumping off point.  https://en.wikipedia.org/wiki/J._J._Hagerman

I’ve wondered if “Hagerman Lake” in Michigan’s UP is connected to J. J.  Hagerman and this seems to prove that point.

It turns out that Hagerman Lake is named after J. J. Hagerman,
a very colorful miner and industrialist from the 1800’s. This is confirmed
by Jack Hill on page 39 of his history of Iron County, in which he says that
“on the earliest maps Hagerman Lake bears the name of Lac Brule. The origin
of the name Hagerman is of more recent date and in all probability came from
J. J. Hagerman, a mineral and timber investor who secured large land holdings
surrounding the lake during the early development of the County.”

from http://hagermanlake.org/?p=history

“First Ice on Hagerman- Photo by Pete W.” from the HagermanLake.org site

Well that is just a tiny tidbit about Michigan, glancing at the state from an historical perspective and my husband’s familial connections to my home state.  Of course our family was extremely excited that my husband has Maize & Blue blood too!

Image result for maize blue

from a Google.com image search for “maize & blue”

Rocking Detroit for Jesus!

My husband’s band, Harken, has a couple of music videos posted on YouTube, but they were hard to find via the search engine so I’m posting them below for easy access.  Both videos were recorded at the same event, Hosanna Palooza, an outdoor Christian music and craft festival that apparently occurs the same day as the Telegraph Dream Cruise (we ate at a restaurant after the concert along the Cruise route & had awesome views of some of the Motor City’s great Classic Cars that evening…what a treat!)

image from this page: http://jobbiecrew.com/6th-annual-tele-car-cruise/

The day this concert happened temps got up over 100 degrees Fahrenheit and the guys were at the music festival for several hours before playing.  It was truly by God’s grace that none of us suffered any heat exhaustion.  This was a special day for our family for it was the first time All of our kids were able to see their dad’s band play with their new lead singer.  This was such a God honoring event and a privilege to participate as a support to our family’s version of a “Motor City Mad Man”–my husband, Michael, the bass player.

He is an amazing man who has lived a life of sacrificial love before our family, friends, and colleagues.  God has gifted him in so many ways yet he remains humble, joyful, and playful as he lives out his faith daily in the crucible that Special Needs Parenting (& Marriage) can be.  Thank you, Lord, for blessing me with a Godly man to love, laugh with, and live this crazy, amazing life alongside!  “A three-strand cord is not easily broken”– that would be a husband, wife, & the Lord in the center of their marriage!

VOICE  Ecclesiastes 4:12
And if one person is vulnerable to attack, two can drive the attacker away. As the saying goes, “A rope made of three strands is not quickly broken.” Biblegateway.com

Image result for enjoy life scripture ecclesiastes 9:9

(the above image comes from a Google Images search for “Ecclesiastes 9:9)

 

 

The info is from the given youtube pages–note the chorus for “Your Will” is taken directly from scripture, a personal favorite aspect of many Christian songs of impact!

Psalm 40:8

New International Version (NIV)

I desire to do your will, my God;
    your law is within my heart.”

from BibleGateway.com

Published on Jul 24, 2016

Our original song Your Will recorded at Hosanna Palooza on July 23, 2016 in Redford, Michigan.

Published on Jul 23, 2016

Our original song Dose Of The Ghost recorded at Hosanna Palooza, July 23, 2016 in Redford, Michigan.

Finally, here is a link to their ReverbNation page with more band info, & audio for 6 songs.

Harken rocks Hosanna Palooza, July 23, 2016

this picture is from the band’s Facebook page here:

As an extra treat, here is the “tribute page” of his previous band, Binding Faith where their whole CD can be heard and there is video footage of another outdoor Michigan festival where this band was blessed to play, filmed by their drummer’s son…

“Chaoticness!”

Harken Bass Player, Michael Curren, at Rocktoberfest 2013

from the band’s Facebook page here:

Michael Curren & Valerie Stoddard engaged, Christmas 1991…What a Gift!

Photo from my husband’s Facebook page, our informal engagement pic from December 1991…“it’s not the years, it’s the mileage,” Indiana Jones.  Here’s what Michael said there on Facebook about this picture, approaching our 20th Anniversary:

I love her twice as much as the day I met her, and I would do it all again. Bring on the next 20 years!

 

Curren family at Skyline Cafe, U of M Hospital, Ann Arbor, Michigan, November 2014              (left to right) Nathaniel, Brandon, Clarissa, Michael, Valerie, & Josiah

Our family 2 years ago at the University of Michigan Mott Children’s Hospital, “Skyline Cafe”, following a day of genetic testing to attempt to pinpoint diagnoses our special son, Josiah (foreground, right) might have…usually just J & I do the hospital runs…

Well, there’s lots of personal info in this posting so I’m going to be checking back here to review pictures & sounds whenever I might need just this kind of a pick-me-up.

Blessings to All,

Valerie