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Advice for the Young and Penniless Who Want to Travel. — The Shooting Star

This is all the advice I wish someone had given me when I was sixteen.

via Advice for the Young and Penniless Who Want to Travel. — The Shooting Star

Although the age part is not applicable to me, but rather to my children…the budget part sure does apply.  When I was in High School I was a member of American Field Service (AFS), an international student exchange program and was selected to go on a Summer AFS exchange.  Unfortunately for me there was literally No Place in the Entire World that wanted me…wow.  I did get very close to the International Exchange students at my high school during my senior year, especially Monina & Edgardo from the Philippines, Astrid from Germany, and Veronique from Belgium.  Veronique & I even had fun on an outing in downtown Detroit & Greektown where I got the chance to practice my fairly rudimentary French skills in conversation with her.

I plan to return to the above blog post to check on some of the authoress’s online recommendations…and to share her insights with my more adventurous kids…and perhaps some of their friends.  My husband has done his share of armchair travelling using Google Street View and Google Earth…something I have yet to try but hope to at least apply to genealogical endeavors, as in getting a digital glimpse of an historically significant place…at least from a family history perspective eventually…Blessings, Valerie

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Bing.com image search for “the earth is the Lord’s”

Rooted

Toodling around today at Word Press various other bloggers’ postings have loosely inspired these thoughts on being rooted…At our Memorial Day Weekend trek to/from the family Cottage in Gaylord, Michigan my husband & I collected a number of plants from the property to transplant to our own yard in Metro Detroit.  We actually left a few plants in Gaylord accidentally & they were kindly transported South by my parents later!

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Bing.com image search for “fragrance of life scripture”

Previously we had transplanted a couple of Lilac “bushes” and they are doing really well in our yard.  Those lilacs were individual woody stalks, possibly decades old, that had held on in the harsh climate and poor sandy soil conditions of Northern Michigan and now flourish as expansive bushes in our backyard.  In fact, our newly married son wants to take a transplant from our transplant(s) so that he & his wife can have some familial lilacs in their yard too.  These transplanted lilacs are very special to me because they come from my grandparents’ property and remind me of them, and their love, whenever I look at the bushes or smell that amazing lilac smell.  Also while growing up there were a few lilac bushes outside my bedroom windows and that heady fragrance always takes me back to those carefree days just a bit…

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From a Bing.com image search for lilacs

For years I’ve wanted to get further lilac transplants from my great-grandparents’ property that’s just a few blocks away from The Cottage.  The Cottage flowers are a light purple, aka Lilac!, color, but some of the lilacs from my great-grandma’s garden are white & some of a darker purple, or so I thought.  If we don’t do the lilac gathering during the Memorial Day trip we have to wait another year to confirm the location and/or color of any potential transplants, and this concept minus action has occurred many times.

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from a Bing.com image search for “cottage turret”…this is about the right size as the historical family cottage…

This year we encountered the latest owners of one of my great-grandparents’ cottages, the one with a turret that is near the railroad tracks.  We had a lovely chat with them, were able to view the recently renovated & gorgeous interior of that cottage, and get permission to get some of my great-grandma’s lilacs!  We ended up digging up a couple smallish single stalks from the white bush and they are definitely taking root in our flower beds!

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From a Bing.com image search for lilacs

We also got to see some photos of their cottage as it previously existed as a Texaco gas station.  According to the new owners this little gem of a building, one storey with an interesting octagonal turret, started its life in Detroit.  They showed us a photo of the alleged first cottage owner but he did Not appear to be my great-grandfather (Rowland Edward Thompson).  We shared what tales we could recall about the gas station cottage with my Dad & Aunt (they both spent Every Summer of their respective childhoods at the Gaylord Cottage) to see if the tales lined up with our family lore.  According to my Aunt Pat, Patricia Kay Stoddard Armstrong Ziemba, she was actually there when my great-grandmother, Florabelle Mansell Thompson, negotiated a purchase price and bought the gas station cottage.  Pat swears the gas station was in Gaylord, and she remembers where it had been located and observed it being moved to its present location.  Mysteries here…

 

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From a Bing.com image search for lilacs

Well there weren’t appropriate Dark Purple lilacs at the great-grandparents’ cottage site so we searched further afield.  There had been an amazing bush in a neighborhood flowerbed near where our Gaylord home was located, but we couldn’t find it on this trip.  We did, however, discover an even larger Deep Rich Purple lilac bush near an intersection in town, so we can easily recall its location.  Now we just need to track down the property owner to get permission to dig up a couple of new starts…Can’t wait!

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from a Bing.com search for “myrtle lily-of-the-valley”

We also took several starts of myrtle, lily-of-the-valley, forget-me-nots, and some purple “weeds” that can happily grow in our grass to help fill in a bare patch in our backyard under a spreading maple tree.  There are also some long leaved plants interspersed with some lily-of-the-valley plants to fill in some of the barrenness between our trees between the sidewalk & the street.  Myrtle & Lily-of-the-Valley grow along the house & driveway in my parents’ yard (the home I grew up in) and we had already transplanted some Myrtle to our front flower bed a few years back and it has filled in things beautifully.  These two species seem to spread easily so will need some attention to keep them in check, but honestly I love both of these flowers so much, and they remind me of my childhood home & the Cottage so much that the maintenance is worth it!

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from a Bing.com search for “myrtle lily-of-the-valley”

 

Each of these plants are a tangible representation of the gift of life…a heritage passed down from my great-grandparents to my grandmother and indirectly from both their yards to us.  They also are directly and indirectly from my parents & grandparents and are likely to continue on to my son & his wife.  We’ve received the gifts of physical & mortal life from our forbears and they’ve also blessed us with the heritage of faith–the seeds of eternal life in Christ Jesus.  We’ve passed those gifts on to our children & look forward to them continuing to be passed on to the generations to come…just like so many of the flowering beauties that unify & connect our hearts & all of our earthly properties.

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from a Bing.com image search for “Ephesians 3: 17”

Reason vs Emotion

There is an amazing article at AmericanThinker.com that is well worth the read!

“Picture two cliffs separated by a great chasm. The cliffs are made of sedimentary rock, layer upon layer, each a slightly different shade. On one side the stone deposits have built up on bedrock, solid and immovable – absolute truth. On the opposite bank the levels are less regular and horizontal. The foundation on which they rest their considerable weight is cracked and volcanic, full of air bubbles, nearly weightless – relative truth.”

Read more: http://www.americanthinker.com/articles/2017/06/cliff_hanging_and_earthquakes_.html#ixzz4k7tw309e
Follow us: @AmericanThinker on Twitter | AmericanThinker on Facebook

http://www.americanthinker.com/articles/2017/06/cliff_hanging_and_earthquakes_.html

The author uses the cliff analogy to clearly articulate differences between foundational morality based on biblical truth and scientific analysis and the concept of being blown about by the winds of the moment, a form of relative “truth” that is really no truth at all.

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from Bing.com image search for “build house on rock scripture”

I’ve spoken in recent days to both my husband and my special son about how God has blessed us with rational minds and has stated in several places in scripture the importance of using our minds, “taking our thoughts into captivity, into the obedience and knowledge of Christ”.  Also, to my knowledge, there is no place within scripture where we are told to Follow our emotions.  What a blessing, since emotions are so fleeting and malleable they represent a dangerous place from which to base one’s views of oneself, the world around us, issues of the day, or even to define our human (as well as spiritual) relationships.

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from a Bing.com image search for “mind scripture”

Scripture is replete with examples of the heart crying out in pain, frustration, and confusion to God about myriad issues and injustices.  Examine Psalms, Lamentations, Ecclesiastes, and even Proverbs to see many passages where human emotions are on full display.  However none of these passages admonish us to use those emotions to define our biblical worldview.

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from a Bing.com search for “mind scripture”

Two scriptures related to the nature of emotions and their “proper” use come easily to my mind, both copied below from BibleGateway.com:

Ephesians 4:26 New International Version (NIV)

26 “In your anger do not sin”[a]: Do not let the sun go down while you are still angry,

Footnotes:

  1. Ephesians 4:26 Psalm 4:4 (see Septuagint)
New International Version (NIV)Holy Bible, New International Version®, NIV® Copyright ©1973, 1978, 1984, 2011 by Biblica, Inc.® Used by permission. All rights reserved worldwide.

 

Ephesians 4:14-16 New International Version (NIV)

14 Then we will no longer be infants, tossed back and forth by the waves,and blown here and there by every wind of teaching and by the cunning and craftiness of people in their deceitful scheming. 15 Instead, speaking the truth in love, we will grow to become in every respect the mature body of him who is the head, that is, Christ. 16 From him the whole body, joined and held together by every supporting ligament, grows and builds itself up in love, as each part does its work.

New International Version (NIV)Holy Bible, New International Version®, NIV® Copyright ©1973, 1978, 1984, 2011 by Biblica, Inc.® Used by permission. All rights reserved worldwide.

The first passage acknowledges that we will experience anger and that it is vital to not sin in/with that anger.  It also says to resolve that anger quickly, that very day.  Obviously this is much easier to say than to do…and all my “baggage” related to the Special Ed Case reveals that many suns have gone down and my “wrath” is still lurking about…

The second passage is emphasizing “Speaking the Truth in Love” (but the context is included because it really illuminates what the AT article articulates).  This Speaking the Truth is such an amazing shorthand for how we are to live the life of faith…we are to speak Truth and we are to speak In Love.  Those seem to be contradictory actions, but through the power of the indwelling Holy Spirit the Lord can enable us to find that balance point of both Truth and Love in our interactions with others…

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from a Bing.com image search for “mind scripture”

As far as being rational vs being emotional, here’s another couple of Bible verses that reveal the importance of this perspective, also from BibleGateway.com:

2 Timothy 1:7 King James Version (KJV)

For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind.

 

2 Corinthians 10:4-5 New International Version (NIV)

The weapons we fight with are not the weapons of the world. On the contrary, they have divine power to demolish strongholds. We demolish arguments and every pretension that sets itself up against the knowledge of God, and we take captive every thought to make it obedient to Christ.

New International Version (NIV)Holy Bible, New International Version®, NIV® Copyright ©1973, 1978, 1984, 2011 by Biblica, Inc.® Used by permission. All rights reserved worldwide.

 

Luke 10:27 New International Version (NIV)

27 He answered, “‘Love the Lord your God with all your heart and with all your soul and with all your strength and with all your mind’[a]; and, ‘Love your neighbor as yourself.’[b]

Footnotes:

  1. Luke 10:27 Deut. 6:5
  2. Luke 10:27 Lev. 19:18
New International Version (NIV)Holy Bible, New International Version®, NIV® Copyright ©1973, 1978, 1984, 2011 by Biblica, Inc.® Used by permission. All rights reserved worldwide.

I guess that’s enough for now…but please consider checking out the AmericanThinker.com website for yourself to be inspired and encouraged…

Blessings,

Valerie

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from a Bing.com image search for “mind scripture”

PS If you are not familiar with scripture I encourage you to look up pertinent words on your image search engine of choice.  I personally love seeing the beauty & truth of scripture displayed artistically and it can be such a blessing.  There are many such images that are also posted at Pinterest.com.  BibleGateway.com is a free seachable Bible repository with virtually all English translations of scripture and many other languages available as well.  A small amount of effort in these easily accessible online arenas can help you reap big rewards and hopefully encourage your heart as well.  Blessings, V

Some Thoughts on “The Price That We Pay as the Keepers of the Memories”

This referenced blog posting is quite insightful and spoke to me as the author articulates an intersection between Family Historian and encounters with pain and death…which, of course, also reminds me of walking that Special Needs Tightrope…These remarks from her blog posting (see below) especially resonated!

“I am my family’s Keeper of Memories.  I pay a price because of that.  But it is a price I would pay again and again because the joy, understanding, and connections that come, outweigh the price every single day…The depth of my pain only exists because of the depth of my love and the joyful memories…”

from https://thegenealogygirl.blog/2017/06/13/the-price-that-we-pay-as-the-keepers-of-the-memories/

Also within her posting she refers to Eternal Families and has a link to share her beliefs.  I did not click that link nor read what she said on that topic, so I am not endorsing her viewpoints, as I don’t know what they are.  From my own Biblical Christian perspective I consider the concept of an “eternal family” to be applicable to the family of God, and those who are in the household of Faith.  There are many biblical passages where family is addressed, especially from the perspective of eternity.

Historically the Jews/Hebrews were/are God’s Chosen People.  Abraham was the Father of Faith, because “he believed God and it was credited unto him as righteousness.”  Later in the New Testament the process of being “grafted into the vine” or “made children of Abraham” is described as a faith journey, beyond descendancy via blood (unless you are referencing the Blood of Christ).

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Bing.com image search for “scripture gentiles grafted in”

Galatians 3:6-8 New International Version (NIV)

So also Abraham “believed God, and it was credited to him as righteousness.”[a]

Understand, then, that those who have faith are children of Abraham.Scripture foresaw that God would justify the Gentiles by faith, and announced the gospel in advance to Abraham: “All nations will be blessed through you.”[b]

Footnotes:

  1. Galatians 3:6 Gen. 15:6
  2. Galatians 3:8 Gen. 12:3; 18:18; 22:18

New International Version (NIV)Holy Bible, New International Version®, NIV® Copyright ©1973, 1978, 1984, 2011 by Biblica, Inc.® Used by permission. All rights reserved worldwide. From BibleGateway.com

 

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from a Bing.com image search for “I am the door”, in context this is Jesus speaking…

 

Jesus describes himself as The Way and The Door.  The only way to the Father is through him.  So, from my understanding, we All have the option of becoming part of the Family of God, of accepting Christ, and then sharing in eternal life.  This assurance of eternity in the Lord’s presence, and being united with loved ones in the faith provides me (and many others) great comfort when those seasons of death and loss arise.  Losing a loved one who is a Believer means only a temporary “See You Later” style of goodbye, not a permanent severing of the connection for those of us who are also in Christ!  As scripture says, “we do not sorrow as those who have no hope”.

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Bing.com Image search for “I am the way”

Here is a lengthy passage of scripture worth pondering…

Romans 11 New International Version (NIV)

The Remnant of Israel

11 I ask then: Did God reject his people? By no means! I am an Israelite myself, a descendant of Abraham, from the tribe of Benjamin.God did not reject his people, whom he foreknew. Don’t you know what Scripture says in the passage about Elijah—how he appealed to God against Israel: “Lord, they have killed your prophets and torn down your altars; I am the only one left, and they are trying to kill me”[a]?And what was God’s answer to him? “I have reserved for myself seven thousand who have not bowed the knee to Baal.”[b] So too, at the present time there is a remnant chosen by grace. And if by grace, then it cannot be based on works; if it were, grace would no longer be grace.

What then? What the people of Israel sought so earnestly they did not obtain. The elect among them did, but the others were hardened, as it is written:

“God gave them a spirit of stupor,
    eyes that could not see
    and ears that could not hear,
to this very day.”[c]

And David says:

“May their table become a snare and a trap,
    a stumbling block and a retribution for them.
10 May their eyes be darkened so they cannot see,
    and their backs be bent forever.”[d]

Ingrafted Branches

11 Again I ask: Did they stumble so as to fall beyond recovery? Not at all!Rather, because of their transgression, salvation has come to the Gentiles to make Israel envious. 12 But if their transgression means riches for the world, and their loss means riches for the Gentiles, how much greater riches will their full inclusion bring!

13 I am talking to you Gentiles. Inasmuch as I am the apostle to the Gentiles, I take pride in my ministry 14 in the hope that I may somehow arouse my own people to envy and save some of them. 15 For if their rejection brought reconciliation to the world, what will their acceptance be but life from the dead? 16 If the part of the dough offered as firstfruitsis holy, then the whole batch is holy; if the root is holy, so are the branches.

17 If some of the branches have been broken off, and you, though a wild olive shoot, have been grafted in among the others and now share in the nourishing sap from the olive root, 18 do not consider yourself to be superior to those other branches. If you do, consider this: You do not support the root, but the root supports you. 19 You will say then, “Branches were broken off so that I could be grafted in.” 20 Granted. But they were broken off because of unbelief, and you stand by faith. Do not be arrogant, but tremble. 21 For if God did not spare the natural branches, he will not spare you either.

22 Consider therefore the kindness and sternness of God: sternness to those who fell, but kindness to you, provided that you continue in his kindness. Otherwise, you also will be cut off. 23 And if they do not persist in unbelief, they will be grafted in, for God is able to graft them in again.24 After all, if you were cut out of an olive tree that is wild by nature, and contrary to nature were grafted into a cultivated olive tree, how much more readily will these, the natural branches, be grafted into their own olive tree!

All Israel Will Be Saved

25 I do not want you to be ignorant of this mystery, brothers and sisters, so that you may not be conceited: Israel has experienced a hardening in part until the full number of the Gentiles has come in, 26 and in this way[e] all Israel will be saved. As it is written:

“The deliverer will come from Zion;
    he will turn godlessness away from Jacob.
27 And this is[f] my covenant with them
    when I take away their sins.”[g]

28 As far as the gospel is concerned, they are enemies for your sake; but as far as election is concerned, they are loved on account of the patriarchs, 29 for God’s gifts and his call are irrevocable. 30 Just as you who were at one time disobedient to God have now received mercy as a result of their disobedience, 31 so they too have now become disobedient in order that they too may now[h] receive mercy as a result of God’s mercy to you. 32 For God has bound everyone over to disobedience so that he may have mercy on them all.

Doxology

33 Oh, the depth of the riches of the wisdom and[i] knowledge of God!
    How unsearchable his judgments,
    and his paths beyond tracing out!
34 “Who has known the mind of the Lord?
    Or who has been his counselor?”[j]
35 “Who has ever given to God,
    that God should repay them?”[k]
36 For from him and through him and for him are all things.
    To him be the glory forever! Amen.

Footnotes:

  1. Romans 11:3 1 Kings 19:10,14
  2. Romans 11:4 1 Kings 19:18
  3. Romans 11:8 Deut. 29:4; Isaiah 29:10
  4. Romans 11:10 Psalm 69:22,23
  5. Romans 11:26 Or and so
  6. Romans 11:27 Or will be
  7. Romans 11:27 Isaiah 59:20,21; 27:9 (see Septuagint); Jer. 31:33,34
  8. Romans 11:31 Some manuscripts do not have now.
  9. Romans 11:33 Or riches and the wisdom and the
  10. Romans 11:34 Isaiah 40:13
  11. Romans 11:35 Job 41:11

New International Version (NIV)Holy Bible, New International Version®, NIV® Copyright ©1973, 1978, 1984, 2011 by Biblica, Inc.® Used by permission. All rights reserved worldwide. From BibleGateway.com

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Bing.com image search for “grafted into the vine”

Well, thanks for stopping by.  May you find the Lord to be your Savior, Healer, & Lord and may he comfort & sustain you during those seasons of sorrow…and magnify your joy as you Abide in the Vine!

Blessings,

Valerie

thegenealogygirl

PETERSON, Grandma and Grandpa with Kent kids, 1987 My siblings and I with our grandparents – Ronald and Margaret Peterson.  1987

The first time I read The Giver by Lois Lowry, I was in my late teens or early twenties attending college.  I was instantly struck by the lack of true joy that existed in the community because of the absence of historical knowledge and freedom of choice.  The stripping away of freedoms, the complete control of the environment – even the weather itself – eventually led to a deterioration in all that makes us human.  No one chose their own career, spouse, number of children, what to eat.  They took daily “vitamins” to control their sexual urges.  Children were bred and then placed with families.  Members of the community were instructed in every way.  They even lost their ability to see color.

But there was one community member who was the “Keeper of Memories”.  This community elder…

View original post 1,197 more words

Thoughts on “I Can’t Do This Special Needs Life”

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from Bing.com image search for “special needs life”

It’s always with a bit of fear & trepidation that I ever decide to engage the special needs arena more directly than daily life requires, especially when it’s mandatory (like IEP time).  Well, this short article came into my inbox and some of her thoughts below really resonated…

I can’t do this; be a wife, a mom, a nurse and keep my tears behind dry eyes.  I had dreams of doing things in the medical field a lifetime ago. That didn’t happen for reasons upon reasons. But here I am, working (and living) in the medical field every day. I didn’t expect my patient would be my own child. Now that those long-lost dreams are alive and well in my everyday life all I can think of every moment is, “Please God, I can’t do this.”

from: http://www.keyministry.org/specialneedsparenting/2017/6/9/i-cant-do-this-special-needs-life

The bolded part in the above quotation is what got me back typing away here.  Through a series of seemingly random events I studied and graduated University with a Pre-Med Degree (BS, Bio-Medical Chemistry).  I did take the MCAT (Medical College Admissions Test) and did marginally well but just never applied to Medical School.  At that time I was getting burned out on an extreme science emphasis like my basically Chemistry Major/Biology Minor Degree had demanded; I needed a break.  Being pretty eclectic in my interests & “motivations” (if one can even say I have the latter!) I was just not really interested in then pursuing medicine right out of my undergraduate program; I ended up pursing Christian Counseling instead…

The ironic thing is that I partially made this decision because I “wanted to have a life” and thought the extensive studies and training involved in Med School would mean many years before I would get much reprieve or enjoyment out of living.  Amazingly, before a decade had passed, I too, like the mom above, was facing the most challenging of all patients, my own extremely complex special needs child, and truly my life would never be my own again…

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from a Bing.com image search for “sick child”

Frankly I don’t know how anyone copes with the challenges, upheavals, sorrows, rage, exhaustion, confusion, depression, isolation, and tediousness of it all without the Lord’s saving Grace & Peace!  These extensive trials have driven our family to the Foot of the Cross time & time again.  And even with His “Peace that passes understanding” there are many days when we just have to slog it out…& it ain’t pretty either!

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from a Bing.com image search for “comfort in suffering”

I still honestly don’t know what to do with all the “stuff” that has been crammed down into my soul with minimal if any real “processing” time or resolution.  It is difficult for me to make sense of some of those special needs experiences without some outlet for said processing–which is one of the reasons for the existence of this blog at all.

Only considering my “special” son’s particular needs, here’s some of what we’ve faced:

  • Pregnancy problems/IUGR (Intra-Uterine Growth Retardation AKA small for gestational age)
  • Prematurity, Very Low Birth Weight, 2# 6 oz (qualified for SSI in the hospital)
  • Failure to Thrive
  • Congestive Heart Failure
  • Complex structural birth defects
  • 2 1/2 months in the NICU (Neo Natal Intensive Care Unit)
  • Ambulance ride to a different hospital for Open-Heart Surgery
  • Living apart from my husband for 3 months during heavy season of stress
  • Inability to directly breastfeed my son due to his weakness, so nearly 3 months of pumping breastmilk for him to be gavage fed via a tube in his nose, or alternatively to feed his twin when we were apart because I was in the hospital with his brother around the clock…
  • Open heart surgery at 2 1/2 months & ~4 pounds; the night beforehand being the only time our entire immediate family was in one room together, as in I was preparing myself/us for the possibility that our son would die & that pre-op visit would be all the time that we ever had together as an intact family…
  • Urinary Tract Infection delaying hospital discharge, I discovered this
  • Relatively short time at “home”; Life threatening respiratory infection (RSV) leading to an across state ambulance ride and re-hospitalization, and the admission X-Ray revealing an unexplained broken rib so “formality” inquiries; he had a second RSV hospitalization when about a year old
  • Breathing Machine (Nebulizer) with meds & chest percussions
  • Seemingly endless vomiting with practically every feeding and/or dosage of meds
  • Various Proprioceptive & Vestibular interventions, brushing, joint compression, etc (mostly done by me)
  • Problems with hernias requiring near emergency surgery during the post-op phase from Heart Surgery
  • Visiting Nurses
  • Medicaid
  • WIC
  • County Health Departments
  • Numerous Medical Specialists with sometimes conflicting advice
  • In Home Therapy visits (PT, OT, Speech)
  • In Home Teaching, in three different cities
  • Preventive Care Services, support for a family in near crisis
  • Being written up in our local paper because of the uniqueness of our situation
  • Authorized coverage for respite child care so my husband & I could get a reprieve, but an inability to use this service because we couldn’t find anyone capable of handling Josiah’s needs and our other two or three kids…
  • Major behavioral & emotional problems
  • Balance Problems & Hearing Loss needing Myringotomy Ear Tubes surgically placed numerous times to help correct
  • Autism Spectrum issues, but not diagnosed early enough nor classic enough to get real help from the school system
  • Sound Field System in School
  • Neuropsychological Testing numerous times, virtually all data was ignored by school “professionals”
  • Unspecified Neurological Impairments
  • Balance, Equilibrium, Processing, & Sensory Challenges
  • Unusual Therapies; Sensory Integration Therapy, Music Therapy, Art Therapy, Social Skills Group, etc.
  • Early-On Program
  • Developmental Assessment Clinics
  • Virtually no “typical” twin experiences, nothing like what “the books” say
  • Complex staged birth defect surgeries
  • Positional Head Deformity, requiring an orthotic helmet to reshape the skull
  • Moving our residence across the state to be closer to adequate medical care (husband’s job change & our near year separation, except for weekends, during the entire selling/moving process)
  • Second Open Heart Surgery at about 4 1/2 years with statements implying that another heart surgery would be likely within a decade (though a 3rd surgery in this domain still pends)
  • High Blood Pressure, Blood Pressure Monitoring Machine, spotty compliance
  • Numerous Medications over the years
  • Social isolation for our son in particular, but our family as well, due to the complex challenges & lack of awareness on other people’s parts
  • Years of car rides, mornings, announcements of plans changing, etc that resulted in ceaseless screaming, hitting, kicking, etc…=familial upheaval
  • Years of deliberate “button pushing” of all family members, being a deliberate atomic bomb within the family=massive stress
  • Lifelong Pediatric Cardiology care
  • Lifelong Pediatric Urology care
  • Massive battles with Special Education after having positive Special Ed Pre-School experiences
  • Only one month in “real school” with his twin brother
  • Having to “repeat” a year of Special Ed Pre-school due to educational negligence, incompetence, &/or indifference & my own weaknesses in entering the fray
  • Severe Learning Disability in Math, misinterpreted as global delay
  • Tutoring
  • Being told for years we needed Advocacy help, but rarely finding any available and/or affordable
  • Community Mental Health, home & center-based care
  • Insurance challenges in getting needed services covered/provided
  • Respite Care, both in home and center based
  • Chronic Bedwetting, well into the teen years
  • Multiple Sleep Disorders requiring CPAP usage
  • Congenital Double Vision, eventually “corrected” surgically
  • Student Aides/Para-Professional involvement only after major battles with Special Ed even though doctors insisted this was vital at the outset of regular schooling
  • Massive Educational & Disability Discrimination…any real recourse here???
  • Learning about free advocacy training and materials but when pursuing them discovering the programs were cut; same now in relation to job training issues
  • Having a Brain Tumor and Liver Masses discovered at virtually the same time
  • Getting Cancer evaluations
  • Human Growth Hormone deficiencies, but no real treatment because of other complicating issues
  • Being accused by school staff of inappropriate behavior that he didn’t do, and not allowing a parent to be present to assist him in processing the situation
  • Brain Tumor removal through the nasal passage, so no visible scarring!
  • Ultimately needing & getting a whole Liver Transplant
  • Lifelong Liver Transplant Clinic care
  • ADHD, Depression, Anxiety, OCD (Obsessive Compulsive Disorder)
  • Unexplained dizzy spells, EEGs don’t reveal reasons
  • “Hypoglycemia”
  • Emergency Room Runs for injuries & once for an environmental breathing issue that I thought meant my son would die in my arms before we reached the hospital
  • Pervert encounters in the park as a child and at school as an adolescent, with major emotional fallout
  • Spiritual battles that periodically resurface & blindside & overwhelm him
  • Continuing to help him navigate the world, including processing why even though he and his twin brother are a minute apart in birth times their life experiences are worlds apart
Image result for comfort in suffering

from a Bing.com image search for “comfort in suffering”

Well, my oldest son has mentioned on a number of occasions how I “never use my education”, since I’m not currently in the workforce.  It has honestly taken every aspect of what I’ve learned formally, inter-personally, spiritually, and experientially to navigate the extremely treacherous waters that Special Needs Parenting has led us through.  Some doctors have kindly indicated that I have a virtual medical degree by way of this personal parenting experience.  Whatever I have become, much of it is now attributable to being a Special Needs Mom.  It has become a burden, a badge of honor/courage, and ultimately a blessing.  In God’s Kingdom He brings Beauty for Ashes, Light from Darkness, and Hope beyond Despair!

Though I didn’t ask for this calling, as much as it lies within me, I try not to shirk the attendant responsibilities.  We’ve spoken as a family on these matters a number of times and we all agree we wouldn’t change things, even if we could.  As my eldest son has said, “Josiah is the heart of our family!”  So we are Challenged, Confused, Cracked Up, and Comforted by his uniqueness.  He still sees the Lord with “unveiled face”, being so pure of heart.  The rest of us might be relatively normal by this world’s standards, but Josiah stands tallest and purest in the Kingdom of God!  It is all of our privileges to walk along side of him in this crazy, painful, wonderful life…

Image result for beauty for ashes

Image from a Bing.com image search for “beauty for ashes”

 

 

Encouragement…

There is a genealogical blog I enjoy reading and today the author shared some shocking revelations she recently discovered about a beloved deceased parent.  Please feel free to check out her original posting (it’s not too long) and learn about the many difficult facts she is wrestling with…a cautionary tale for us all along the lines of “There but for the Grace of God go I”.  Learning about other’s profound challenges can also help us put our own difficult times into perspective and generate an attitude of thankfulness for the challenges we face in our own lives.  My comments to encourage her are in italics below…Blessings to All, Valerie

https://dna-explained.com/2017/04/01/april-fool-meltdown-thanks-to-william-sterling-estes-52-ancestors-154/#comments

valeriecurren on April 2, 2017 at 4:17 am said:

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Dear Roberta,

Thanks so much for sharing your heart rending story…what incredibly powerful & painful revelations to now have to wrestle with. We live in such a fallen, broken world, and even those we love can let us down in unimaginably cruel ways. One way I’ve come to grips with some of the pain of the past is to think of our life experiences (and the choices of our forbears, to some degree) as threads woven together into a tapestry. In this life we only ever seem to view the backside (no pun intended!) of the artist’s creation. However, the God’s-eye view/heavenly perspective is always of the other side…a completed master work of art! Those painful experiences, from our view seem as random, inappropriate threads that would surely ruin the tapestry’s beauty…but God Himself, the Master Weaver, takes what the Enemy meant for evil, and brings out profound good for those of us that love Him!

Regardless of your father’s seeming failures one thing he surely got right…he helped to bring about your existence in this world!!! Certainly your life and the beauty, joy, and inspiration you bring to others are more than enough justification for his complicated existence….Please take your time to “process” these new revelations and when you are ready plow ahead into this new as yet unexplored territory…covering your journeys with prayer, peace, and grace.

Blessings,

Valerie Curren

 

Image result for scripture encouragement

Bing.com image search for Scripture Encouragement

Onion, Cheese, & Garlic Pull Apart Bread

So I made another food experimental attempt to take some Pull Apart Bread to this year’s Thanksgiving Dinner.  Based on a request for a repeat of a previous recipe used that of course I wasn’t able to locate…so further online searching ensued and I adapted the below recipe for my  current creation.

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image is from a bing.com image search

When beginning online searching I hoped to find or adapt a recipe allowing me to use some (presumably Sage flavored) pork sausage and biscuits we had on hand…however on closer examination I found it was Hot sausage so then revised the plan.  Also, I planned to use a 9 x 13 covered pan  instead of the usual bundt pan, to simplify cooking & serving.

Here’s my version of the adapted recipe…and after we eat it tomorrow I’ll update this posting with a “verdict” on this attempt’s success.

Onion, Cheese, & Garlic Pull Apart Bread

2 cans refrigerated biscuits

1 medium onion

1 1/3 sticks of butter

2 Tablespoons olive oil

1 teaspoon minced garlic

1/2 cup water

1/2 cup light colored wine

1 1/2 teaspoons dried thyme

garlic salt with parsley

1 1/2 cups of cheddar jack shredded cheese

  1. Dice Onions & cook in Olive Oil and 1/3 cup of Butter, adding Thyme and Garlic during cooking.  (Note:  I cooked them in my metal 9 x 13 pan on the stove top, but using the methods described in the original inspirational recipe may yield better results.)
  2. When onions are nicely browned add Water & Wine and simmer til all excess liquid is gone…add Stick of Butter to melt completely.  Remove from heat.
  3. Cut Biscuits into quarters and add half to the pan, stirring to coat with onions and butter.  Sprinkle with Garlic Salt and Cheese.  Repeat with remaining biscuits, etc.
  4. Cover pan and cook at 350-375 for 15-25 minutes (this will require watching to determine cooking time & temperature…and this particular time I will be at the mercy of the Hostess’s oven settings–I’ll attempt to elaborate results later.)
  5. Turn out onto a serving platter or serve from the original dish, as desired.

 

Image result for Cheesy Garlic Pull Apart Bread

image is from a bing.com image search

The website with the original recipe has multiple photos showing the steps in visual form and there are helpful comments from both the author and visitors to inspire creativity…Please consider checking out the original site below for details…

As with my previous recipe attempt there were multiple sites I considered in developing my own version, these being the main contenders:

https://www.pillsbury.com/recipes/grands-cheesy-herb-monkey-bread/3ef18467-86b1-498d-8e40-a3f1f0d6ee03

http://allrecipes.com/recipe/219639/garlic-and-herb-pull-apart-bread/

http://www.cooks.com/recipe/f727v8hu/easy-pull-apart-rolls.html

http://www.cooks.com/recipe/aq1at71s/pull-apart-bacon-bread.html

http://allrecipes.com/recipe/229347/sams-biscuit-garlic-monkey-bread/

https://www.pillsbury.com/recipes/garlic-parmesan-monkey-bread/196d51a9-e334-4631-b026-cdc860babf92

http://www.brit.co/pull-apart-bread/

The last site listed above has 30 different versions of Monkey Bread!

Here’s the original recipe inspiring this current offering:

Cheese and Onion Monkey Bread

Cheese and Onion Monkey Bread

Cheese and Onion Monkey Bread, serves 10
-2 large cans of biscuit dough

-1 Tbs of butter
-1 yellow onion, peeled and thinly sliced
-1 Tbs of fresh thyme

-2 cups sharp cheddar cheese, shredded

-1 cup butter

1) Preheat the oven to 350 degrees. Prepare an angel food cake pan with a removable bottom and set it on top of a rimmed sheet pan.

2) In a large pan, add 1 Tbs of butter and the thinly sliced onion. Sprinkle with salt and cook over medium heat until the onion slices begin to brown, about 5 minutes.

3) Add 2 cups of water and a few sprigs of fresh thyme andlet the onions simmer in the water, (which should have picked up the browned bits from the pan) until the onions are soft and juicy- about another 5 minutes. Set aside.

4) Cut each biscuit into quarters.

5) Meanwhile melt the 1 cup of butter in a small sauce pan.

6) Brush the inside of the pan lightly with the melted butter, then begin to add about 1/3 of the dough balls.

7) On top of the dough balls, sprinkle a third of the onions and cheese.

8) Repeat with remaining dough balls and onions and cheese. When everything is in the pan, pour the butter evenly over the entire pan.

9) Bake the monkey bread in the oven for about 45 minutes, and then remove from the oven and let it sit for another 10-15, or until cool enough to handle.

10) Turn out upside down onto a serving platter and pull apart to experience pure, buttery, cheesy heaven!

Update: Verdict

This dish was a hit based on feedback of several family members.  The taste was very good. The texture was a bit dense.

Baking Times, Temps, & Challenges
There were challenges with the baking process (which based on conditions at the hostess’ home meant starting at 350 and ending at 375 degrees).  Also, this dish was made the night before and “refrigerated” (as in left in my vehicle overnight with 30-ish outside temperatures).  We started the baking process with the concoction at this colder temperature, which wouldn’t be the case in likely typical preparation scenarios.  Also, I really don’t know how much time this was cooked for as I repeatedly set the timer for anywhere from 2-5 minutes, after an initial cooking time of 20-25 minutes, and kept checking on the bread.  It seemed to take quite a long time before it began to minimally “puff” up.  So, next time I would try cooking it at 375 initially (this was the temperature suggested on the biscuit packaging) and select an approximate baking time based on reviewing several similar recipes as a starting point.  Also, it would likely be better if the dish was near room temperature prior to baking.  I left the lid on the pan for at least the first half of the total cooking time, hoping this would aid in getting the temperature up sooner, but removed it later to facilitate the overall “browning” process.  Our final result was not nearly as “browned” as the inspirational recipe’s photo, by choice.
Liquid Issues
Regarding the liquid, if choosing to use liquid to plump up the onions & “de-glaze” the sauteing pan I would use less water and possibly more wine (and a wine that was less sweet than the fruity one I’d used).  I had almost no issues with cooking the onions in the same pan I was baking this dish in.  The only real challenge was in layering the dough evenly, since I wanted to ensure that each piece was coated with the butter and the onions were reasonably evenly distributed.
Fats & Pans

There were no issues with adding some Olive Oil to the cooking process, nor with the reduced butter.  There was sufficient butter for it to bubble up throughout the baking process (and the 9 x 13 pan allowed the butter to saturate virtually every piece of bread, which is likely different than had the bundt pan, suggested by the inspirational recipe, been used instead–though the bundt pan would have allowed a more “elegant” presentation than our more “practical” lidded pan–we used the lid, slightly offset, during the buffet food service to help the dish retain heat); it would even be feasible to reduce the butter even more without adversely affecting the quality of the dish.

 

Finally, I would definitely make this concoction again.  In fact none of this delectable bread was left over for another usage…we ended up finishing it off later that night, as it was nearly addictive, even using the microwave to reheat it many hours later.
image from a Bing.com image search for “Thanksgiving”